S.863

The Genomic Data Protection Act grants consumers rights over their genomic data from direct-to-consumer testing companies.

The Genomic Data Protection Act mandates that direct-to-consumer genomic testing companies provide consumers with the ability to access, delete, and destroy their genomic data. Companies must also inform consumers about their rights and how to exercise them. Companies cannot delete data if it is subject to a legal order or required for compliance. The act defines genomic data and excludes deidentified data used for research. It also outlines enforcement by the Federal Trade Commission and preserves state laws unless they conflict with federal provisions.