Candis King Hope for Sickle Cell Families Act establishes a data collection program on sickle cell disease.
The Candis King Hope for Sickle Cell Families Act mandates the Secretary of Health and Human Services to implement a Sickle Cell Data Collection program. This program will collect data on the incidence and prevalence of sickle cell disease in the United States, focusing on the demographics and healthcare utilization patterns of affected individuals. The Act also requires the reinstatement of certain employees removed from the Division of Blood Disorders and Public Health Genomics of the Centers for Disease Control and Prevention.
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