California SCR148 declares May 23, 2026, as GM1 Gangliosidosis Awareness Day.

California SCR148 declares May 23, 2026, as GM1 Gangliosidosis Awareness Day. The resolution highlights the importance of raising awareness about this rare inherited disease, which causes neurodegeneration and progressive loss of abilities. The bill aims to address the underdiagnosis and misdiagnosis of GM1 Gangliosidosis, which affects one in every 100,000 to 200,000 live births. Early diagnosis is crucial for managing clinical complications, genetic counseling, and accessing potential treatments.

California SCR148 declares May 23, 2026, as GM1 Gangliosidosis Awareness Day.

California SCR148 declares May 23, 2026, as GM1 Gangliosidosis Awareness Day. The resolution highlights the importance of raising awareness about this rare inherited disease, which causes neurodegeneration and progressive loss of abilities. The bill aims to address the underdiagnosis and misdiagnosis of GM1 Gangliosidosis, which affects one in every 100,000 to 200,000 live births. Early diagnosis is crucial for managing clinical complications, genetic counseling, and accessing potential treatments.