California SB1047 establishes a neurodegenerative disease registry program to collect and report data on diseases like ALS and Alzheimer's.
California SB1047 amends the Health and Safety Code to establish a neurodegenerative disease registry program. The program mandates the collection of data on the incidence and prevalence of neurodegenerative diseases, including ALS and frontotemporal degeneration. Hospitals, physicians, and other healthcare providers must report cases of these diseases to the California Department of Public Health. The department will notify relevant associations and the Medical Board of California about this requirement. The collected information will be confidential and used to track disease patterns.
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